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JOS CERVICAL CANCER TRUST

extract from the Jo's Trust website ....

Jos cervical cancer trust - Fighting cervical cancer

Our aims

Jo’s Cervical Cancer Trust is there to ensure that women never feel alone at any stage of their journey by providing easily accessed information and support 24 hours a day.

Our vision

Our vision is a future where fewer women are diagnosed with cervical cancer, to see more women survive if diagnosed and ensure every person affected by cervical abnormalities and cervical cancer gets the best treatment, care, information and support.

Objectives

  • Providing information, emotional and practical support to women, their families and friends affected by cervical abnormalities and cervical cancer.
  • Bringing people affected by cervical abnormalities and cervical cancer together for shared support.
  • Campaigning for improvement in standards of support and care.
  • Promoting the importance of prevention and early detection to the public, health professionals and key decision makers.

 What does Jo’s Trust offer?

  • About Cervical Cancer (www.jostrust.org.uk): A portal for information about cervical abnormalities and cervical cancer, written, frequently reviewed and updated by medical professionals.
  • ‘Online forum’: Where women ‘meet’, share experiences, network and support others facing similar challenges.
  •  ‘Let’s Meet ’ We run an annual event enabling women, friends and families to get together for shared support as well as offering informal local ‘get togethers’
  • Confidential Medical Advice: A forum for individuals to post a medical question to our online panel of medical experts.  This increasingly popular service is proving to be invaluable to those seeking a greater understanding of their own condition.
  • Campaigns: Jo’s Cervical Cancer Trust campaigns to influence UK Governments to implement new/improved  preventative, diagnostic and therapeutic procedures for cervical cancer
  • Awareness and education; We work to educate the public and health professionals on key areas relating to cervical cancer, its causes and how it can be prevented.
  • Developing new services: We will shortly be setting up a range of services that will enable us to reach and support more women, including setting up: a dedicated helpline, local support groups and regional information days.

About cervical cancer

Every year in the UK, over 2,800 women will be diagnosed with cervical cancer and nearly 1,000 women will die from the disease. After breast cancer, cervical cancer is the second most common cancer in women aged 35 and under

Cervical cancer is not thought to be hereditary. Cervical cancer, in 99.7% of cases, is caused by persistent infection with a virus called human papillomavirus (HPV). HPV is a very common virus transmitted through skin to skin contact in the genital area. Up to 80% of people of reproductive age will be infected with HPV at some point in their lives. However, for the majority of women this will not result in cervical cancer. Cervical cancer is rare while HPV infection is common

Detection of early changes in the cervix by regular screening is, to date, the most effective method of preventing a cancer from developing. However, with increased understanding of HPV and new technologies, this may change in the future.

Over 4 million women in the UK are invited every year to attend for a smear test. Over 90% receive a normal smear result. However, there is a worrying trend in the UK; fewer women are attending for regular screening following their invitation.  In 2007-8 1 million women (20% of those invited) did not attend screening, whilst for those aged 25 to 29 the figure was even more worrying with only 66.2% attending.

The impact of cervical cancer on a woman's life and that of her family, as with other cancers, cannot be overstated but an abnormal screening result also causes misery, distress and anxiety to thousands of women every year.